A Quincy mother spent months preparing for the life of her newborn son.
Now she's preparing for his last breath.
Drayce Sorenson was born with a birth defect in January 2013.
Breathing and feeding tubes have given him 18 months of life on earth.
Now his mother is making one of the hardest decisions a mother could make in hopes that he'll find peace.
No breath has been taken for granted in the Sorenson family the past 18 months. Drayce Sorenson has spent those first months of life in and out of hospitals in Quincy, Springfield and St. Louis. He was born six weeks early just as his mother, Natalya, did as a baby.
"I didn't have a complicated pregnancy, and we weren't aware he had any health issues when he was born," Natalya Sorenson said. "He was born with facial abnormalities, and he was underweight."
But the medical profession did not have a name for what caused Drayce to have a multitude of health problems. He's been on breathing and feeding tubes since he was four months old.
"You hear the words, 'I don't know' a lot when it comes to his care, and it's frustrating because I don't have any answers as to why he is the way he is or if I'll ever have children who aren't like Drayce," she said.
Drayce had two strokes in May. He hasn't shown any emotion since April. Now Natalya has made an end-of-life decision that no one wants to make. Hospice workers will come to her home on Tuesday to remove Drayce's ventilator.
"He's already put up such a big fight," Natalya said. "He deserves to be happy, and he's been through so much. I think it's time for him not to suffer anymore."
Natalya refers to Drayce as her little Superman, which could explain her strength.
"I'm not quite sure how I'm going to do after he passes, but I'm going to try to be as strong as I can," she said. "I think he's gonna help me feel peace in my heart."
Friends and family held a candlelight vigil for Drayce Monday night outside his bedroom window where they sang lullabies to him.
A fund has been set up to help pay for Drayce's funeral costs.