The 4th annual Cadan's Carnival is less than 2 weeks away.
The benefit on Oct. 21 is in memory of Cadan Frericks, who lost his life to a Congenital Diaphragmatic Hernia almost 4 years ago.
CDH is a birth defect affecting 1 in 2,200 babies. Only about 65 percent survive.
We, at KHQA, have had the privilege of meeting many CDH survivors. This week, we'd like you to meet Anna.
Baby Anna's Story
"We could tell there was a problem when the nurse came in and did the sonogram," Tracy Pasley said.
Tracy was 7 months pregnant with her second child when she and her husband, Alan, received the news. Doctors diagnosed Baby Anna with CDH.
"It's really a birth defect that, unless they've been touched by it, most people don't know about it," Alan said.
Many babies are diagnosed with CDH before birth, which is key to their survival. A hole develops in the diaphragm and can cause organs that are normally found in the abdomen to move up into the chest cavity. This can cause a great deal of problems for lung development.
The Pasleys spent the next few months meeting with doctors at St. Louis Children's Hospital.
Take a behind the scenes look of their journey here.
"We took tours, met with all the doctors. They basically educated us on what diaphragmatic hernia was at that point," Alan narrated, through a video created after Anna's birth.
"The video we did with Washington University and Children's Hospital, that was very important to us because, initially, when we had the diagnosis, there was such little information out there," Alan said.
Doctors gave Baby Anna a 50/50 chance of survival but the odds were in her favor. Surgery just five days after her birth, doctors
"We weren't out of the woods yet when we filmed that, but we wanted someone to have something out there to show that it's not all bad and you can get through this. There are success stories. Play that video. Even if a couple people watch it and realize, there is a little bit of hope with it," Alan said.
Two years later, Anna is a very active 2-year-old.
"She's a very happy, healthy, beautiful child," Tracy said.
In the last couple of years, the Pasleys have made it their mission to bring awareness to CDH. You'll find the entire family at Cadan's Carnival every year.
If you'd like to help other families battling CDH, take part in
on Oct. 21, 2012.
In December of 2008, Tiffany and Rome Frericks lost their baby boy Cadan Christopher to CDH. Since then, they have raised more then $20,000 dollars through Cadan's Carnival. That money is presented to Cadan's doctor at
St. Louis Children's Hospital
for more research on CDH.
Join the Frericks' and Pasleys' at Cadan's Carnival from 1-5 p.m. at the Knights of Columbus in Quincy.