A journey of prayers and support for Hayden Hoskins

Kelsea's 19 week ultrasound showing the omphalocele.

Like any first time parents, Kelsea and Andy Hoskins prayed for a smooth delivery and a healthy baby boy.

But an ultrasound in the 19th week revealed something unusual. It occurs in only one in ten thousand ultrasounds.

"That very first night, I had to look up pictures. I'm getting on the internet and I didn't tell Kelsea what I saw but it was very shocking," Andy said.

In a moment's time, a rare birth defect called omphalocele consumed the thoughts of both Andy and Kelsea.

"Our joy turned to something completely different," Andy said.

"The beginning was scary and we definitely had our moments," Kelsea said.

An omphalocele is a type of hernia that develops in the infant before birth causing organs to grow outside the body, within a sheer layer of tissue. In Hayden's case, it encompassed part of his intestines, stomach and liver. Correcting it wouldn't be easy.

"It's a testing of your faith, too. We've always said we've believed this and now, your feet are in the fire and are you really going to step up and know you have these extra challenges and face them head on?" Kelsea asked.

Due to the size and organs involved in Hayden's case, doctors in Springfield sent him to St. Louis Children's Hospital.

A few months later in February, Hayden was born in a room full of doctors and reporters who documented his journey into the world. You can watch his delivery here.

"The first couple of days you could see right through it," Andy said about the sack of organs.

IV's, central lines and monitors became the norm for these new parents.

Hayden's surgeon, Dr. Brad Warner expected to wait about a year before placing the organs back into Hayden's chest.

"Their concern was they'd push everything back in too soon, putting pressure on his lungs. He wouldn't be able to breathe," Andy said.

But Hayden was a best-case scenario in every way. At five months, he was back on the operating table. Another success story, now hidden beneath a scar.

Today, Hayden's a healthy, happy baby boy.

"Perfect...perfect for us," Kelsea smiled. "There was just a love there that we hope to share with other people and offer them hope that every baby is beautiful and is just what God had planned for you."

With the last 7 months behind them, Kelsea says she's looking forward to a new normal.

"Looking forward to crawling and transitioning to vitamin D milk. Maybe that's just mom," Kelsea laughed.

Hayden's story has tugged on the hearts of many people in the Tri-States. Kathy Asbury and Beth Griffin at Quincy Medical Group have organized a benefit in his name to help the Hoskins Family with financial costs incurred during his stay at Children's Hospital.

The benefit will take place Sept. 28, at Columbus Road Church Kids Zone in Quincy. A silent auction begins at 2 p.m. as well as kids activities. A 50/50 raffle, food, drinks and a live auction will also be a part of the event.